
From running a fashion business to waking up one day discovering I have kidney cancer. I have recorded my journey from fashion victim to cancer survivor. From a daily journal I made in hospital, through my recovery & on to the road to fitness I have written of how I found out, what I felt, how I was treated - and what I wore.
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Thursday, 11 June 2015
Another Day, Another Scan
I'm now just over 2 years on from kidney cancer and this CT has been requested following the lumps being found in my breast and my lymph nodes being raised. The fact I'm still in remission has obviously played a part in the consultant deciding I need a full body scan again. This time I didn't protest.
This is my first CT at Burton, previous scans were at Heartlands before I opted to move hospital but I've visited the unit with my Mom before.
I hadn't long booked in when I was called to go for blood tests, they need to make sure my lonesome kidney is functioning well and can cope with the dye I'm going to have pumped through me.
Next I'm seated in the scan waiting area and given a bottle of water with an iodine solution to drink which apparently helps show up my 'hollow areas'... I have an hour to drink this taking small sips every 10 minutes, the time passes quickly as I'm listening to various stories of why other patients are here.
By the time I'm called I'm bursting for a wee but not allowed to go obviously, this explains why everyone who's exited the scanning room heads straight for the toilet, this is not easy on your bladder! I forget to ask but presume my kidney is doing ok as they prepare to insert the canular in my arm.
CT scans don't require you wear a gown so I'm in leggings and a vest top and being me I am typically cold which must be apparent as I'm offered a blanket. Just my arm is out for the venflon to be inserted and then both arms have to be raised above my head.
The first 'go' through the tunnel is without dye and I hear the familiar 'Breathe in and hold it....now breath out' as the whirry tunnel takes me through. After a couple of 'goes' I'm out again on the conveyor and the radiographer puts the dye through the venflon and reminds me of the sensation that you're weeing. I'm secretly praying I'm not because that sensation is so real. Another couple of goes and I'm back out and can climb from under my blanky and head for the loo, all done.
As I leave I get the nods and smiles from those still waiting and a couple of 'hope all is ok's' which is when I start thinking less about my bladder and more about why I'm there, Sh*t I hope it is ok.
Thursday, 28 May 2015
Appointment Day
My appointment isn't until later this afternoon and my eldest daughter will be accompanying me which is a relief. Josie is a sister in the Emergency Dept at Burton Hospital where I'm headed and so she's back to work on her day off.
The Breast Care Clinic is a dedicated building for breast cancer patients and the clinic I'm attending is a 'New Patient Clinic'. The room soon fills up and with statistics being 1 in 8 women having breast cancer it's apparent that many will leave today with bad news.
It was weird being back here because this is where I brought my Mom for her appointments when she had breast cancer 6 years ago. I also felt as if judgement was being served on me as I've moaned about the fact that there is so much more dedicated care and fundraising given to breast cancer than other lesser known cancers. My experience of kidney cancer left me feeling completely bewildered and alone.
That said I can't fault the NHS or the level of care given, this appointment has been fast tracked and the staff here are amazing.
I'm first called in to see the consultant who asks to examine me, confirms the lump and says that he can also feel that my lymph nodes are swollen. The first time this happened was 2 weeks before my kidney cancer introduced itself so I wasn't happy to hear they were back. However, my lymph nodes have reappeared since with no sinister consequences. He takes some more information from me and then we're sent back to the waiting room.
Next I'm taken in for a mammogram which wasn't easy given my 32AA size...However it was done swiftly by 2 lovely radiographers and I was then taken for an ultrasound scan of the area. For this there were 2 nurses and a doctor who had a look at the mammogram images then started to scan me. Thankfully she very quickly confirmed that the lump I had felt was a benign cyst. It was said very matter of fact but the relief was immense. However she then asked the nurses to take a look at the images and explained that she wasn't happy with what she could see and I'd need another mammogram.
Back out to the waiting room with Josie who was obviously becoming concerned as I'd been a while in there already. Once the room was free again I was called for a second mammogram for which I felt like a contortionist the way I had to be positioned. Then the radiographers accompanied me in to have another ultrasound. Lying there with 5 professionals querying what they saw made me very nervous. Then the doctor said I could take a look, it appeared as though my upper right side was shadowy compared to the left. When they zoomed right in it looked as though I had several other cysts.
Once I was dressed again I was sent back out into the waiting room until I could see the consultant again. Having learnt my lesson about wearing ridiculous clothing when attending hospital (although previously this had been in an ambulance) I'd attempted to take the lead from Lisanne Vos who wrote in her blog R U Kidneying Me about how she turned up for her surgery in gym gear with a positive mental attitude. For this appointment I looked like I'd arrived for a yoga class in leopard print Puma leggings and a fitted sports top - not easy to peel on and off for each examination, another hospital clothing fail.
It wasn't long before I was called in to see the consultant and he got straight to the point saying that the good news was my lump was definitely benign. He then went onto add that given my history and the fact my lymph nodes were swollen and the ultrasound scan uncertainty he was booking me in for a CT scan.
This was something I'd avoided since November 2013 after having 3 CT scans + a bone scan in close succession due to my kidney cancer. However, I now felt quite relieved, I just wanted to know if there was anything nasty lurking around inside me and so the saga continues.
Good news + unanswered questions = a continued state of limbo.
I had thought I'd got this cancer thing sorted but it had other ideas. Last time it arrived without warning, this scare has taken up the best part of a month and taught me I have no control over that C word. It can torment your head, attack your body, stop you from sleeping and worst of all, keep you guessing.
Wednesday, 27 May 2015
Pause
I'm a bit all over the place at the moment as you can imagine. I can't settle to do anything today. Sunday was a family day, Monday spent getting sorted after holiday so busy with washing, shopping etc and little time for idle thought. Oh, I did have an appointment for a cervical cancer check to attend yesterday, great timing but I it has to be done, that's another letter that'll be in the post shortly.
Today however I'm so tired, combination of a busy day yesterday and hardly any sleep last night. My feelings are divided between sensibility 'stop worrying and get on with things ' and fear ' what if...'
I've rationalised both scenarios. If everything is ok I'll breath as it of relief and crack on with life (after offering up a huge prayer of thanks). If the news is bad I'll probably shed a few tears and, crack on with life - I got through it once so I can do it again.
The real fear right now is not knowing, I feel my life is on hold. I've written previously about how fortunate I was to have fallen ill suddenly the first time, no waiting and worrying, no pain or suffering beforehand. This is excruciating especially at night when all my worst fears seem to close in.
What about my family, how will they cope, how will I walk our dogs, I won't be able to go running, play netball, do yoga. It's not f***ing fair!
Goodbye Wales
Arriving home the first thing I see is a pile of post on the stairs, that can wait. It's amazing how quickly you slip back to routine, within no time I'm busy sorting, preparing and planning the week ahead. I easily manage to dismiss my unopened post.
It'll be there in the morning.
Monday, 25 May 2015
Harder, Better, Faster, Stronger
I didn't sleep particularly well again so it wasn't easy getting out of bed but boy was it worth it, I took nearly a minute off my time from Tuesday. My normal distance is 2 miles of a morning and this run is just short at 1.8miles but I still ran a personal best time for the mile.
There is definitely something in the runners high feeling you get that motivates you into the day. When I'm running my thoughts are clearer and this morning I've had an idea...
Back to make some notes, stop wasting energy worrying about might be's and start making plans.
Sunday, 24 May 2015
The Calm Before
Apart from the sea breeze it's quite still and I've settled down for a day sunbathing and reading. I have nothing to do and nowhere to be.
When I spoke to my daughter earlier this week she mentioned a 1st class letter from the hospital that had arrived for me. I am of course expecting my appointment through but didn't want to tell her. She asked if I wanted her to open it in case it was anything important, I said whatever it is will have to wait.
In between books, puzzles and the odd bit of work that crops up (online retail never really has a holiday) my mind wanders. I have nothing to do and nowhere to be, yet I feel restless, maybe it's just my mind.
Saturday, 23 May 2015
Keep On Running
It's a spectacular setting, I'm running along a straight, flat footpath along the coast road with mountains ahead of me and the sea to my right. The tide is out and the sky is almost clear as the sun rises, it's cool right now but it'll be another scorcher later.
The mountains ahead are known as the 3 sisters and as I reach the next village and turn to go back, I'm now heading towards the Snowdonia range with the sea coming in to my right.
On my left are farms with a patchwork of fields and the birds are trying to drown out the incoming tide with their dawn chorus.
I'm running, I feel good and my surroundings are just beautiful. There is absolutely nothing to fear, how could there be, this is the life.