In the 12 months since my discharge from the Queen Elizabeth Hospital, Birmingham, I have done my utmost to distance myself from kidney cancer. This has not been easy.
For one thing, it's brought a lot of guilty feelings surrounding the support I received as a patient. I was fortunate to discover Kidney Cancer UK and the Kidney Cancer Support Network, both of which offered unfailing help and excellent advice. Having been an established Twitter user prior to kidney cancer due to my fashion business, my followers were subsequently given lessons in medical terminology when my cancer diagnosis was made; hence the fashion victim to cancer survivor tag. Getting signed off was like being cut free and as such, I dropped away from the group pages and forums that had been there for me during treatment. It makes me feel I've turned my back on others needing that support now. I just needed normal, without cancer if that makes sense?
I did, however, discover running during my recuperation which in turn led to some fundraising. Again, my Twitter feed became a source of running and nutritional posts during this two year period as I went from 5K to a marathon, raising over £2,000 in the process for the charities. It also introduced me to Facing up 2 Kidney Cancer another charity that gave me wonderful support.
Getting back to work post-cancer wasn't easy. I had a couple of false starts following health setbacks and a drop in confidence. The fashion industry is a fickle business as well as being extremely superficial, at times it just didn't sit right with me. I sold my vintage stock and dropped the tribute work to concentrate on the ethical side of my business, reworking and upcycling clothing. I then switched track completely and went forward making activewear, influenced by my running habit and new found love of yoga. Before too long I was doing both and the pop fashion was creeping back in. Now I pretty much do it all! One business idea I am proud of is the hospital gown design I created. Obviously, this stemmed from having to wear so many gowns myself that I determined to make a more user-friendly option. The Coverstory Dignity Gown is still in its infancy but will definitely remain part of my business thanks to my kidney cancer experience.
In hindsight, I do feel I can thank kidney cancer for my new direction. There were lifestyle changes I needed to make. A cancer diagnosis is a drastic way to stop you in your tracks but it gave me more to live for.
Writing has always been a part of my life and post cancer it was a natural way to make sense of what happened. The blog progressed and became the start of a book which led me to join Tamworth Writers; another positive step forward.
I can't write and update without mentioning my current health status. As a patient, I researched frequently what the prognosis of a kidney cancer diagnosis would be. My tumour was 7" and contained in the left kidney. When it introduced itself it haemorrhaged, which is why my diagnosis was sudden and shocking. I had no symptoms that I can remember so being rushed via blue light ambulance that morning was a total head f**k. Maybe because of that, I'll never be entirely confident everything will be ok. I was left with some nerve damage as the surgery was invasive due to the large bleed, this has left me with ongoing back and abdominal pain. I get frequent water infections, not sure why? I have regular blood tests for kidney function and have recently had issues with substantial bruising, again not sure why (I've not been fighting). All in all, cancer in whatever form it takes never really leaves you. They can cut it out, zap it with chemo and radiotherapy or feed you concoctions of drugs but the seed of it remains. Whether you choose to believe that is a real entity or just the seed of fear in your head is again not of your choosing. On good days it's a bad dream on others it's as real as a diagnosis. That is my experience and the legacy kidney cancer left.
On a final note, I'd like to thank the Tamworth Wellbeing & Cancer Support Centre which I've visited frequently. The work they do there is incredible (and they now have the coolest charity ambassador in Joe Lycett!) From the first time I stepped through their doors several years ago I had an epiphany, that realisation that I was part of a select group, I had cancer. Before that, it was someone else's problem, another person's illness. Cancer introduced me to some of the kindest most thoughtful people I've ever met, many form this wonderful charity.
For everyone else who has entered my world as a result of kidney cancer, thank you - life wouldn't be the same without you.
Debbie XXX
From running a fashion business to waking up one day discovering I have kidney cancer. I have recorded my journey from fashion victim to cancer survivor. From a daily journal I made in hospital, through my recovery & on to the road to fitness I have written of how I found out, what I felt, how I was treated - and what I wore.
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Thursday 20 June 2019
Sunday 24 June 2018
Finish Line
It's taken me a week to sit down and write this post. Partly due to how busy life is at the moment and also because the news is still sinking in. I'm all clear. No evidence of disease. Five years cancer free.
Last Monday I travelled over to the Queen Elizabeth Hospital in Birmingham to meet with my specialist kidney cancer nurse to find out my scan results. I hadn't been expecting good news. Over the past few weeks I've been feeling unwell. I'd had a suspected water infection and then after routine cervical cancer screening had been referred for another scan due to bleeding.
My five year renal scan and chest x-ray came first and then a couple of weeks later a lower scan including bladder and ovaries. During this time I began to suffer from dizzy spells and was prescribed antibiotics. All in all I wasn't on form but had thankfully completed my marathon run.
I travelled to the QE by train having planned to meet my husband there. This gave me plenty of time to gather my thoughts which over the previous week or so had been far from positive. During the past five years I'd never felt as low and certainly hadn't worried as much about results. In fact I've been extremely optimistic for the most part. However, the combination of feeling unwell and the symptoms had me fearing the worst. Add to this not having received a letter of all clear and my mind was in turmoil. I couldn't get this far and not cross the finish line. The five year milestone had become my focus since training for the marathon, this story had to have a happy ending.
The train took me straight to the University station which is a short walk from the QE. As I was early I sat a while people watching in the large open foyer, like so many others there I suspected this could be a life changing day.
The traffic had been horrendous and parking wasn't easy which meant that Johnny met me with only five minutes to spare. We made out way down to the outpatients waiting area where we had only a short wait before being called through to another waiting room. Before long my name was called and the nurse, Susan greeted me with a hug.
When we last met - which was only our second time due to me having switched hospitals and our first without the consultant, I found out we had a lot in common. We were born on the same day a year apart and Susan was also a runner. I'd emailed in advance about my marathon and brought along both the half and full marathon medals to show her. We got chatting about running and Susan gave me a donation for the kidney cancer support network fundraising. I was so pleased John was there to meet her too and we talked about marathon training and how busy I was making wedding dresses. It then transpired that Susan had also been a dressmaker making holy communion dresses. The similarities kept on coming.
It was time to get down to business and most important, results. It was then that Susan read from the scan report which told me that everything was normal. My remaining kidney was a good size and the left side renal bed showed no evidence of metastasis. The relief that flooded me was immense, my tears were falling before she'd finished reading. I had held so much worry and tension inside and it began draining away as the news sunk in. As I mentioned at the start, I'm still registering it, I feel as though I've cheated somehow and I'll be caught out.
Better still, I was then told that I could be signed off from consultant care and go back to visiting my GP. This isn't to say that if I had any concerns I couldn't contact Susan in future but I wouldn't have to make the journey back and forth for scans and clinics. I confirmed that this was exactly what I wanted and it was time for me to say goodbye. First though I had to have some blood tests as my kidney function hadn't been checked for twelve months.
Susan walked us out to the waiting room and we hugged once more. It had taken nearly four years for me to see a specialist nurse. Heartlands didn't have one and I wasn't at Burton long enough to know. It had been worth the wait to meet such a dedicated and sincere professional, thank you Susan you made a dreadful experience so much better.
The blood test was straightforward and we were soon on our way home. I kept repeating the same thing, it's over. I am still saying those words to myself, I really am one of the lucky ones. I couldn't wait to phone our girls with the good news and my Mom and family. Johnny took me for a meal to celebrate and later I went through my contacts texting everyone my wonderful results.
The rest of the week was pretty normal. I've told a few more people and had plenty of hugs and well wishes but I haven't felt the closure I expected. It's like the cancer has left a scar that I can't seem to cover up. Maybe it's early days and kidney cancer is still part of my life - I'm writing about it now. Or maybe this is how it is, like grief. It leaves you but takes a little part away and that small piece leaves you questioning what might have been.
In my case I had a successful fashion business, would it have grown? Is it time to revisit that now? Did cancer take my confidence as well as my kidney or is that just my age? So many questions still remain. Was it something I ate? Did I drink too much? Is it hereditary? Oh and the big one, will it come back?
Who knows?
What I do know is that I've ticked off the marathon and crossed that ultimate hurdle of five years cancer free. I've set myself a task of putting this blog into book form, a job which has taken a back seat lately due to the small matter of a wedding dress and four bridesmaids to complete in the next four weeks for our youngest daughter. Add to that the wonderful addition to our family of a first grandchild, Rudy Francis who has of course needed a lot of cuddles.
When I started this blog I'd had a Rude Awakening. One day changed my life for ever. Not everything that kidney cancer has brought about has been for the worse though and if it's possible to make the best of a bad experience I dont think I've done too bad. I'm most proud of the marathon which, to date has raised £1535 for Kidney Cancer Support Network and Facing up 2 Kidney Cancer.
Thanks to everyone who's supported me throughout. I'd like to think my kidney cancer experience can offer a little hope.
Last Monday I travelled over to the Queen Elizabeth Hospital in Birmingham to meet with my specialist kidney cancer nurse to find out my scan results. I hadn't been expecting good news. Over the past few weeks I've been feeling unwell. I'd had a suspected water infection and then after routine cervical cancer screening had been referred for another scan due to bleeding.
My five year renal scan and chest x-ray came first and then a couple of weeks later a lower scan including bladder and ovaries. During this time I began to suffer from dizzy spells and was prescribed antibiotics. All in all I wasn't on form but had thankfully completed my marathon run.
I travelled to the QE by train having planned to meet my husband there. This gave me plenty of time to gather my thoughts which over the previous week or so had been far from positive. During the past five years I'd never felt as low and certainly hadn't worried as much about results. In fact I've been extremely optimistic for the most part. However, the combination of feeling unwell and the symptoms had me fearing the worst. Add to this not having received a letter of all clear and my mind was in turmoil. I couldn't get this far and not cross the finish line. The five year milestone had become my focus since training for the marathon, this story had to have a happy ending.
The train took me straight to the University station which is a short walk from the QE. As I was early I sat a while people watching in the large open foyer, like so many others there I suspected this could be a life changing day.
The traffic had been horrendous and parking wasn't easy which meant that Johnny met me with only five minutes to spare. We made out way down to the outpatients waiting area where we had only a short wait before being called through to another waiting room. Before long my name was called and the nurse, Susan greeted me with a hug.
When we last met - which was only our second time due to me having switched hospitals and our first without the consultant, I found out we had a lot in common. We were born on the same day a year apart and Susan was also a runner. I'd emailed in advance about my marathon and brought along both the half and full marathon medals to show her. We got chatting about running and Susan gave me a donation for the kidney cancer support network fundraising. I was so pleased John was there to meet her too and we talked about marathon training and how busy I was making wedding dresses. It then transpired that Susan had also been a dressmaker making holy communion dresses. The similarities kept on coming.
It was time to get down to business and most important, results. It was then that Susan read from the scan report which told me that everything was normal. My remaining kidney was a good size and the left side renal bed showed no evidence of metastasis. The relief that flooded me was immense, my tears were falling before she'd finished reading. I had held so much worry and tension inside and it began draining away as the news sunk in. As I mentioned at the start, I'm still registering it, I feel as though I've cheated somehow and I'll be caught out.
Better still, I was then told that I could be signed off from consultant care and go back to visiting my GP. This isn't to say that if I had any concerns I couldn't contact Susan in future but I wouldn't have to make the journey back and forth for scans and clinics. I confirmed that this was exactly what I wanted and it was time for me to say goodbye. First though I had to have some blood tests as my kidney function hadn't been checked for twelve months.
Susan walked us out to the waiting room and we hugged once more. It had taken nearly four years for me to see a specialist nurse. Heartlands didn't have one and I wasn't at Burton long enough to know. It had been worth the wait to meet such a dedicated and sincere professional, thank you Susan you made a dreadful experience so much better.
The blood test was straightforward and we were soon on our way home. I kept repeating the same thing, it's over. I am still saying those words to myself, I really am one of the lucky ones. I couldn't wait to phone our girls with the good news and my Mom and family. Johnny took me for a meal to celebrate and later I went through my contacts texting everyone my wonderful results.
The rest of the week was pretty normal. I've told a few more people and had plenty of hugs and well wishes but I haven't felt the closure I expected. It's like the cancer has left a scar that I can't seem to cover up. Maybe it's early days and kidney cancer is still part of my life - I'm writing about it now. Or maybe this is how it is, like grief. It leaves you but takes a little part away and that small piece leaves you questioning what might have been.
In my case I had a successful fashion business, would it have grown? Is it time to revisit that now? Did cancer take my confidence as well as my kidney or is that just my age? So many questions still remain. Was it something I ate? Did I drink too much? Is it hereditary? Oh and the big one, will it come back?
Who knows?
What I do know is that I've ticked off the marathon and crossed that ultimate hurdle of five years cancer free. I've set myself a task of putting this blog into book form, a job which has taken a back seat lately due to the small matter of a wedding dress and four bridesmaids to complete in the next four weeks for our youngest daughter. Add to that the wonderful addition to our family of a first grandchild, Rudy Francis who has of course needed a lot of cuddles.
When I started this blog I'd had a Rude Awakening. One day changed my life for ever. Not everything that kidney cancer has brought about has been for the worse though and if it's possible to make the best of a bad experience I dont think I've done too bad. I'm most proud of the marathon which, to date has raised £1535 for Kidney Cancer Support Network and Facing up 2 Kidney Cancer.
Thanks to everyone who's supported me throughout. I'd like to think my kidney cancer experience can offer a little hope.
Monday 21 May 2018
My Unfashionable Cancer Marathon
It’s 8.57 on 13th May 2018. I’m amongst around
2000 runners waiting for the countdown to Shakespeare Marathon in Stratford on
Avon. Alongside me on the other side of the railings are my husband, youngest
daughter and her fiancé, more excited I think than I am.
I’m wearing the same gear I had on for the Birmingham Half
Marathon seven months ago, green vest printed on the back with the charities
I’m running for and on the front Missfit, my business and social media name. My leggings are a multicoloured design called
Hip Hop that I made myself. The race number 1018 is attached to the front of my
vest top with race clips that read ‘Run Like You Stole Something’ and my Asics
trainers have a colourful graffiti pattern, I guess I’m quite noticeable.
Normally I run in a cap but I’ve opted to wear sunglasses and hope
the sun doesn’t make too strong an appearance, I overheat easily. The most
important piece of kit I have on is my Garmin watch to help pace myself.
During training my pace has increased the further I’ve run.
Previously I set an average time of 8.30 when running shorter distances. I’d
ambitiously set out to run a marathon pace of 9.30, what a fool I was. The
seconds ticked over into minutes the longer I ran until I hoped for a marathon
pace of around 10.20. The bib number 1018 gave me hope that I may match that
on race day.
As we wait in Stratford town centre I’m approached by a man
who holds out his hand and tells me what an inspiration I am, he’s read the
local news story about my marathon attempt. All around me are runners wearing
charity vests. MacMillan used to be the most popular with Cancer UK always
having a good show. Today it seemed that Mind, the mental health charity that
came out tops probably to coincide with mental health awareness week. Next to
me is a very nervous young lady, it’s her first attempt at a half marathon,
both full and half start the course together with full doing a second lap.
She’s envious of my support team who are encouraging me as we wait for the
klaxon.
The guy starting the race is Steve Edwards, world record marathoner running his 822nd marathon this will be his 22nd Shakespeare Marathon the first having been in 1985. The start rope is lowered and we begin to move forward, slowly at first then momentum gathers. We cross the timing mat at the start line and the small chip attached to everyone’s trainers is activated, the race has begun. Some of us will be running for just over an hour others for more than six hours. The distances each have a different coloured bib, for the marathon mine is red, most around me seem to be white for the half.
The guy starting the race is Steve Edwards, world record marathoner running his 822nd marathon this will be his 22nd Shakespeare Marathon the first having been in 1985. The start rope is lowered and we begin to move forward, slowly at first then momentum gathers. We cross the timing mat at the start line and the small chip attached to everyone’s trainers is activated, the race has begun. Some of us will be running for just over an hour others for more than six hours. The distances each have a different coloured bib, for the marathon mine is red, most around me seem to be white for the half.
For the first part of the run we skirt around the town
centre where support from spectators is excellent. Stratford on Avon is the
most picturesque town I’ve run through but my focus is on getting into a steady
pace. Negotiating bends and keeping away
from the barriers takes concentration with so many runners for a while, I have
a dread of tripping over and ending my race at the beginning. I’d been
positioned relatively near the front of the crowd at the start which meant I
was being passed by more experienced and/or energetic starters. Avoiding feet
and elbows was tricky until the road widened and we ran out into more suburban
streets then out for a short stretch on the Evesham Road.
By this time the field was evening out more. We reached the
first drinks station just after mile two, I always run with my own water
bottle. For this race I added an
electrolyte tablet as with one kidney I worry about dehydration. In a running
belt I also carried two energy gels and some jelly babies. I don’t normally run
with my phone but carried it so that I had contact with my husband – just in
case. For the next couple of miles we wound around country lanes and then
started to ascend to the village of Luddington. My hill training paid off as
this barely challenged me. There was already a queue waiting for the loo at the
first WC station just before the four mile marker, thankfully that urge wasn’t
on me, yet. We wound around more country lanes and past houses whose occupants
made the special effort to stand out and cheer us on. Kids holding bowls of
jelly babies and motivational music along the route are always welcome together
with the shouts of encouragement and there was no shortage here. My favourite
resident was the guy spraying passing runners with a hose pipe, I was straight
through that no messing.
By now runners had begun to settle in to their pace and
small groups were forming. I’d run past a couple of people only to be overtaken
by them a little further on. Faces and charity vests became familiar as well as
running styles. Quite a few runners were ‘Jeffing’ by now, the run/walk method
so called as it was taught by Jeff Galloway as a way to increase distance and
endurance. I was overtaken by a guy dressed in full Shakespeare costume who
must have been sweltering as the heat was really turning up by mid morning.
Then I heard an odd squeaking noise approaching and turned to see a man
carrying what appeared to be a large backpack heading past me. As he moved in
front I could see it was a huge rubber boob complete with nipple, two hand
prints and the slogan Cop-A-Feel, a breast cancer charity. I ran behind the
squeaky boob for about 4 miles.
As we neared mile eight the hill appeared. I’d heard about
Rumer Hill and my husband drove me over it a couple of weeks before the race to
familiarise me with the course. Facing it on foot was another thing entirely
but I kept running, reaching the brow was a real achievement. Just after this
on the first lap we turned off and headed back picking up the Greenway near to
mile ten which is a gritty surfaced trail along a disused railway line. This
track had a slight incline and by this time the sun, which had hovered around
all morning decided to come out and play fully. For me this was the toughest
part so far, there was hardly any shelter from the suns rays and the incline
was taking its toll. The worst part was knowing that shortly before mile twelve
we would split from the half marathon runners and it would be game on for the
big one. The cut off point for the full marathon was if the first 11.9 miles was
not completed in 2hrs25. I passed this point at around 2hrs5.
We crossed an old iron bridge spanning the Avon before
reaching another drinks station and WC point at the divide. The most welcome
sight here were volunteers handing out wet sponges from a large barrel. I made
good use of one on my head and back. It had dawned on me earlier as the sun
beat down that I’d forgotten sun lotion and I could feel myself slowly frying. As
we parted from the shorter distance and headed past mile twelve I felt like
crying. It was the realisation I had it all to do again and more.
As we curved around back out onto the main road I knew I
could take it easier as I’d reached the marathon stage before cut off. It
wasn’t long before I stopped to take a walk and text my husband to let him know
I was on lap two. He’d hoped to see me at the half way point so I’d presumed
he’d not made it on time. It turned out
he’d been directed to the wrong place and saw only the half
marathoner’s heading back.
I checked my Garmin as we reached the half way point 13.1
miles, my personal best had been 2hrs 8 minutes and I was falling behind this
by over five minutes. I heard a couple of runners behind me discussing how it
had taken us longer to reach this stage than it had for Paula Radcliffe to
complete a full marathon. The thought of running the entire course again was
now beginning to fill me with dread. The sun was getting stronger and shade
we’d enjoyed earlier now all but gone. Approaching 14 miles we were leaving the
town behind again and heading out on country roads.
It was now more apparent that more than half the field of
runners had opted for the half marathon. Those of us still going were spread
out along the undulating roads, at some bends I felt as though I were running
alone. Climbing the hill at Luddington again was tough, I’d taken to Jeffing
myself by this time and hills were a definite walk pace. I also took advantage
of the portaloo, no queues now, not even another runner in sight. On we ran
through picturesque villages, past pubs which were by now filling up with
lunchtime customers who cheered us on. When the 18 mile marker appeared I knew
what would be next, Rumer Hill part two. This time I don’t think I could’ve run
had I wanted to, my legs were beginning to feel painful. I couldn’t even trot
down the hill as my toes were also feeling sore. I took advantage of my more
leisurely pace this time to take a photo from the top of the hill, it was a
beautiful view.
This time around we kept straight on taking a longer route
through Long Marston and down to join Greenway South. The 20 mile marker felt
surprisingly good as I told myself it was just a 10k run to the finish, 10k’s
nothing, I run it often, just not after 20 miles! What I didn’t anticipate was
the ferocity of the sun by this time. I’d already topped my water bottle up
once and by mile 21 had to stop to refill it again. There were very few running
now, I think we were all Jeffing. Passing each other back and forth. I’d set my
sights on a woman called Hannah who’d passed me earlier and was determined not
to let her out of my sight, but as she edged out of view I knew I was fading.
Mile 22 was my wall. I’d text my husband to let him know how
far I’d got and tried to remain positive but I felt beaten. Although there was only just over four miles
to go it felt an impossible task. The gravel pathway seemed to keep rising
along the horizon and there was little shelter from the sun. I could feel my
shoulders sizzling and my head was aching. As for my legs, they didn’t even
feel as though they belonged to me. At mile 23 there came relief by way of
another bucket of sponges, cold water down the back of my neck gave me a boost
and I pushed on. I took a photo of the mile 24 marker so my husband would know
I was nearing the finish line. Normally the remaining distance would take me
around 15 minutes but with my pace dropping to a staggering (literally) 11
minute mile it was going to drag. Along this last stretch was the official race
photographer who called for me to look across and smile. Surprisingly I look
remarkably fresh in the resulting photo – obviously wasn’t pushing hard enough!
The final stretch took us off the Greenway and back along a
road before a sharp turn down a small track that lead to the recreation ground
and finish line. I managed to maintain a steady jog now, every muscle in my
legs ached and my toes were very sore but I wanted to run to the end. As the
main field came into sight so did my husband who, after shouting encouragement
while I plodded towards him then ran alongside me till we reached the final
stretch. I was on my own running down to the finish, my name was announced and
I was praised on my choice of leggings.
Crossing that finish line was incredibly emotional. I’d imagined it over and
over, from first applying through training and along the route that day. The
finish line was hugely significant marking 5 years since my cancer diagnosis.
My daughter and her fiancé held up a banner alongside my husband as I crossed
the line. The medal was hung around my neck and I collected some water and a
much needed banana.
My tears came as soon as I met my family. It was such a huge
achievement. I’d proved that a cancer diagnosis wouldn’t hold me back in any
way. In fact I’d achieved far more in the past 5 years and was probably fitter
now than ever. As for my time, 5 hours 15 minutes and 52 seconds. A far cry
from my predicted 4.30-5 hours but a result I’m extremely proud of nonetheless.
Things I learnt from running a marathon; there’s nothing wrong with jeffing,
respect those hills, don’t forget your suncream, carry business cards – I’d
have sold loads of my leggings and most important it’s tougher than you think. I said that
this would be my one and only marathon and I stick to that statement. Many
people have told me I’ll change my mind but I’m very sure I won’t. Long
distance running is not for me. I ran a marathon for a specific reason, I
trained thoroughly and ran it to the best of my ability. I chose Shakespeare Marathon because it was so well run with more than half the proceeds going to local charities. The marshals were all volunteers who along with the organisers made the race extra special. As I'm also writing a book it seemed the most apt marathon to enter and of course it's a beautiful setting - I'd highly recommend it.
Thank you so much to everyone who has supported and sponsored my milestone race. To date I've raised over £1400 which will go to kidney cancer research and patient care via Kidney Cancer Support Network & Facing Up To Kidney Cancer.
I am now a marathon runner and a cancer survivor.
I am now a marathon runner and a cancer survivor.
Tuesday 8 May 2018
The Final Countdown
In 2 days I take a trip to the Queen Elizabeth Hospital in
Birmingham for my 5 year scans. I’m hoping the results will mean that I can be
signed off from specialist care.
In 5 days I run my 1st (and last) marathon to
mark the anniversary of my kidney cancer diagnosis. I don’t believe fate should
be tempted, especially when I’m so close to the final hurdle so I’ll wait for
results before declaring myself a cancer free zone. Crossing the finish line
will still be a huge milestone.
Over the past few weeks I’ve seriously doubted my sanity for
taking on a marathon, the training has been gruelling at times. Coupled with
the fact that I’ve had a couple of bouts of illness that have interrupted my
running regime. I suffered with a cough over Christmas and New Year and most
recently had an infection which took me off my feet for a couple of weeks. It
began to look unlikely that I’d be able to run after all. Thankfully I’ve
managed to bounce back from both and take up where I left off.
This weekend I finished my tapering runs and for the first
time in ages felt the enjoyment of running once more as it was a gentle 5 miles.
I just don’t think I’m made for long distance running. For one thing it drains
me of energy both during and after. It’s boring, after mile 6 I begin to wish I
was back home doing something more interesting. It makes me way too hot, a mile
in and I’m cooking so by mile 15 I’m on fire! Apart from all that I just don’t
see the point. Rather than keeping me fit it’s playing havoc with my joints and
back. I’ve had to change my diet by increasing carbs then taking in protein.
This in turn has meant my shape has changed, I’ve never had thighs this big! On
top of that I’ve gained nearly a stone, how does that figure when I’m running
for around 5-6 hours a week at least?
Today I was visited by a photographer from the local
newspaper. I contacted them to see if they would cover my story and they wanted
a picture of me in my kit. I’ve received a lot of support online from the
organisers of the Shakespeare Marathon who are going to announce me at the
start line. My Total Giving page has nearly reached £1,300.00 which is above
and beyond what I’d hoped to raise and the support keeps coming. The KidneyCancer Support Network have sent me a teeshirt for the day and have been
cheering me on from day one as have Jon & Sarah Birchall for Facing up 2Kidney Cancer. It only remains now for me to run that 26.2 miles.
Now, as the day gets closer I am reminded of why I took on
this challenge. The fact that my 5 year scans fall only 3 days before the event
makes this even more poignant. I had
hoped for those 3 little words prior to my run, No Evidence of Disease but I’ll
have to wait until June for the appointment that delivers that news. Support
from my family and friends has been tempered by the concern they feel for the
task I have ahead. I know this isn’t going to be a walk in the park.
Thanks to everyone who’s sponsored me so far and given me so
much encouragement. This final stage is all down to me...
Donate here My Unfashionable Cancer Marathon
Tuesday 13 March 2018
5 Year Finish Line
Today marks 5 years since I was diagnosed with kidneycancer. Strictly speaking I didn’t actually hear the word cancer until the following
day. What I did hear was whispering nurses saying, “She doesn’t know yet” and a
doctor mentioned a ‘mass’ in my kidney. Either way Wednesday 13th
March, 2013 was the day that turned my life upside down, a day of firsts and
the last time I would be carefree about my health.
It would be my first (and second) ride as a patient in an
ambulance complete with blue lights, my first CT scan and hospital admittance
other than pregnancy. Before that day I was blissfully unaware of the 7cm
tumour growing inside my left kidney. Plans that day had included completing a
catsuit order for a Clothes Show customer and arranging a photoshoot for my new
collection. The tumour however had other ideas and decided to make itself known
by hemorrhaging, an action which in turn caused the excruciating pain which
triggered my collapse.
I’ve made no secret of the fact my hospital care has been
sketchy to say the least. It still upsets me when I look back as memories of my
treatment are as painful to remember as the cancer itself. The decision to put
my blog into book format has exacerbated these feelings as reading them over is
like reliving it again. I’m currently on my third draft of the Unfashionable
Cancer novel, there are parts I want to rewrite and others I want to erase but
it’s real life and I can’t change what happened.
The way I chose to turn my life around has been through
fitness. First yoga became a routine part of my week following physiotherapy sessions
for nerve damage. A year later I began running, initially in Race for Life with
my daughter where I rediscovered my love for the sport. An athletics club
member in my youth I’d run regularly until my teens at middle distance. Getting
back out there was a revelation, it not only improved my fitness but healed my
mind. Running somehow gave me clarity and headspace that has helped me come to
terms with all that’s happened.
I took part in a couple more races at 10k distance and then
set the ultimate goal, to run a marathon for my 5 year cancer anniversary. Last
October I reached the half way mark when I ran the Birmingham Half Marathon, I
couldn’t believe how emotional it was crossing that finish line. On Sunday May
13th I will be taking part in the Shakespeare Full Marathon,
Stratford on Avon. As I’m working my way through writing a book it seemed an appropriate
event to enter as well as being one of the smaller marathons; I wasn’t keen on
the huge crowds at Birmingham.
This evening I was back out after a break of a couple of
weeks from running, it still doesn’t come easy but I’m determined to do this. I
haven’t run more than 14 miles so the next 8 weeks are going to be full on but
if I’m going to do it, I’ll do it to the best of my ability. It’s not just my 5
year goal I’m marking, most importantly I want to raise funds for early
diagnosis of kidney cancer and patient care. My fundraising page can be found
here An Unfashionable Cancer Marathon where there’s more info about the
charities Kidney Cancer Support Network and Facing Up 2 Kidney Cancer.
Kidney cancer is still an unfashionable cancer but it’s on
the increase and desperately needs more funding. I am one of the lucky ones and
by putting one foot in front of the other I am beating this disease and can
hopefully help others do the same.
Wednesday 31 January 2018
Designed to Run
Marathon training was halted before it began as I started
the New Year with remnants of a cold that had left me coughing uncontrollably.
I coughed my way into 2018 and continued in this vein for four weeks before
giving in to see my doctor.
The height of my concern that I was unable to run. I had tried
a couple of miles which left me hardly able to breathe and leaving anyone who
saw me cancelling their New Year resolutions to keep fit.
After examining me the GP said my chest sounded ok and
temperature was fine but to be on the safe side he’d send me for an X-ray, more
precautionary in light of my cancer history. I was fine with this but there is
always a niggling anxiety when being zapped with X-rays, the what ifs.
The following day I turned up at the local hospital for my
dose of radiation, one shot and I was all done. Wearing the hospital gown rekindled
my creative desire to get rid of these dreadful NHS robes in favour of the one
I’d designed a few years earlier. As such I’ve since recovered the gowns I made
and will get back to you on progress shortly...
Not being able to run for so long has been incredibly
frustrating when I have a marathon to train for. The only plus side to being ‘on
the bench’ is that I’ve had more time to write. My book An Unfashionable Cancer
Marathon is finally taking shape after 3 format changes, I’m settling back into
a writing rhythm.
One of the things I needed to tie everything together;
running, writing and business was a design, a heading. Something that said exactly what I’m doing and why. For
this there was only one person I could got to, Justin Robert Price.
Justin has been my go to designer for over 12 years now and
from day one was able to turn what I wanted to project into the perfect
imagery. Well he’s gone and done it again with a design to head my Total Giving page amongst other media. It projects my message loud and clear from fashion
victim to cancer survivor through running. Love it.
Now I just need to get back out there and do it!
Thursday 18 January 2018
Unfashionable Cancer Marathon
It's no secret that I applied to run the London Marathon
this year. To be fair at the time I really did want to take part. I knew that ballot
entry was a long shot but it’s not unknown for first timers to get in.
As October drew nearer and results of the draw were imminent
I’d begun to change my mind. When the magazine finally dropped through the
letterbox I was praying I’d been unsuccessful. On seeing the word ‘Sorry’ I
breathed a huge sigh of relief, what had I been thinking?
My change of heart came about for a variety of reasons but
it was running the Birmingham Half Marathon last October that really swayed me.
Despite being proud of my achievement and enjoying taking part, I didn’t like
the razzmatazz that went with it. Realising that I was amongst around 9,000
marathon runners and 12,000 half marathon competitors didn’t excite me. Knowing
that for London Marathon there would be more than 40,000 filled me with dread.
I’ve already blogged about my half marathon so won’t go on
but we were so packed in at times it wasn’t possible to run at a steady pace.
Having trained so hard for so long I’d always intended to not only complete it
but to compete in it. Therefore once I’d received my ‘No’ from London I set out
to find the most suitable full marathon course for my first attempt at the
distance.
In the meantime I was getting frequent messages of sympathy
about being unsuccessful with a London place together with advice about
securing one through the big charities. This however was another of the reasons
I was now firmly against entering this event. I have signed up to run for two
of the charities that mean most to me but they don’t have the kind of money
needed to get charity runners into London. Why then would I turn my back on
them and attempt to raise on average £2,000 for an organisation I have no
affiliation with. This was a big deal to me.
When (or should I say if) I cross that marathon finish line
it will be the end of a very difficult journey.
In March 2018 I will celebrate the most significant cancerversary,
the 5 year goal. I’m careful not to tempt fate by saying 5 years free but
rather since diagnosis and so far so good. Running has been my greatest escape and
also given me a goal. I’m running away from cancer and towards a healthier
future. Being able to complete a marathon will reaffirm my fitness level and
further smash away those nagging doubts about stowaways. More than that I will
cross the line knowing I’ve given something back to the charities that have
helped and supported me through the past 5 years.
I had to give my full marathon choice some considerable
thought; not too big, not too far away, not too commercial, at the right time
of year. I needed it to be just about the run. I’d hovered over one particular
location for a while, everything fitted the bill but there was one more plus.
The Shakespeare Marathon in Stratford on Avon has an entry limit of 4,000, it’s
run in May and organised by the Rotary Club who donate more than half the money
raised to local charities. All of these
tick a box for me but the added extra is that as I’m writing a book about my
experience, what better inspiration to follow than the bard himself.
There it is, I’m signed up and ready to train for the big
one, my first full
marathon on Sunday 13th May, 2018
Wish me luck!
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